PACID is collecting parent stories so we can better inform state legislators and other policymakers about the realities of life with a disabled child or adult. We will anonymize your story if you indicate you want to keep it private. We would appreciate it, though, if you’d at least indicate what county you’re from so we can figure out who your representatives are. Try to keep your story short.
Indicate your age (and your spouse’s age, if you have one) as well as the age and type of disability your child has. Tell us the ages of any other children you might have, and whether you have any extended family able to step in if you die. Indicate what services you currently receive, and then those you lack (e.g., are you on the wait list, and if so, for how long). Feel free to add any additional challenges facing your family.
To respond, click on “leave a comment” (button to the left). Or email me your story directly to carol.ann.conway@gmail.com. You can also email me a picture if you like.
Carol Conway